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This is a full-life journey for these patients, i'm still learning from patients about what their life experience is and how it changes. Being born with a facial difference becomes a life journey that has a lot to do with acceptance. I've learned with patients who are burn survivors -- not victims, survivors -- initially their relationship with the prosthesis changes, too, throughout their lives ... What I try to tell them is, they've been through a lot already, it will also take adapting to the new way they look.
People who sit in this chair are survivors, they don't come to me in this chair without having survived something, and often it's a lot. It takes resilience to get through the treatment. And what they've been through living day-to-day in society takes a resilience we may never understand if we don't go through that. Burn survivors have a resilience that is phenomenal. The reality is, it can happen to anyone. And so maybe that will bring about compassion.
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